How does Sickle Cell Disorder affect women in particular? Women sufferers may feel that they experience stigma regarding their Sickle Cell Disorder as they are not fulfilling societal expectations of femininity and motherhood. For example, women sufferers are often seen in jumpers and coats in the summer rather than more seasonal or fashionable clothes, as […]
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The universal care plan is a digital care plan that service users/ patients can create together with their health care professionals, to help the patients to have consistence of care, to make sure the patient gets the right level of care that they need. The digital care plane is far better than the old version
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Pfizer withdrew Voxelotor (OXBRYTA®) from NHS and the world. The reasons are that it had bad after effects. This was a big blow for the sickle cell patients because already there is a very limited options to manage the sickle cell disorder which is debilitating to those affected. We hope more options are created because
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