INFORMATION & SUPPORT
About Sickle Cell Disorder
Sickle Cell Disorder, a genetic blood disorder that affects millions worldwide, presents significant physical, emotional, and social challenges. Solome’s Sickle Cell advocacy, with your invaluable support, will greatly benefit individuals and families afflicted by Sickle Cell Disorder in the UK and Uganda.
Sickle Cell Disorder is a genetic blood disorder that affects millions of people worldwide and causes significant physical, emotional, and social challenges to those suffering from it. Forming this advocacy will greatly benefit individuals and families afflicted by Sickle Cell Disorder. This proposal describes a strategy to establish a sickle cell support group to improve the quality of life for persons affected by the disorder.
According to NICE, there are about 17,000 people living with Sickle Cell Disorder in England with about 250 new cases a year. about 274 babies in England are born with sickle cell disease and a further 8530 babies are carriers of the disease. This means that the numbers are increasing dramatically. Sickle cell affects about 1500 people in Leeds. Although Sickle Cell Disorder is dominant in people of Black African, Caribbean, Middle Eastern and South Asian heritage, it can also be found in other backgrounds, and this is due to intermarriages.
Recent research shows that Uganda has the fifth highest Sickle Cell burden in Africa, with 13.3% of children having Sickle Cell Trait. 5,000–20,000 babies born with Sickle Cell Disease and 80% of those die before turning five, due to infections, Malaria and complications of Sickle Cell Disorder. According to reports, the incidence of Sickle Cell Trait varies throughout Uganda; in Central Uganda, rates vary from 12.8% to 19.8%.
did you know?
Important facts about Sickle Cell Disorder
- Sickle Cell Disorder is inherited from both parents.
- Patients experience real pain crises, not just seeking pain relief.
- Even carriers (sickle cell Trait) can experience symptoms in some cases.
- About 300 babies are born with Sickle Cell Disorder in the UK each year.
- Uganda ranks 5th highest in Africa for Sickle Cell burden.
- Risk of organ damage, stroke, chronic pain, and more if not managed properly.
Make a difference today
Your donation provides essential resources and support for those affected by sickle cell disease.